VEDS Collaborative - The VEDS Movement
VEDS Collaborative - The VEDS Movement
Apr 8, 2022
thevedsmovement.org
Explaining to people how VEDS is “treated” got me running out of breath #veds #vasculareds #medicaltiktok #faqs #doctortiktok #nursetiktok
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Explaining to people how VEDS is “treated” got me running out of br…
34K viewsFeb 8, 2021
TikTokin_veds_tigator
♥️Understanding Vascular Ehlers-Danlos Syndrome (VEDS) for VEDS Awareness Month. ⭐VEDS is a rare genetic disorder that affects the blood vessels and organs. It's caused by a mutation in the COL3A1 gene, which codes for type III collagen. This protein is essential for maintaining the structure and integrity of blood vessels. *Key Facts:* - VEDS can cause blood vessels to rupture, leading to life-threatening complications. - Symptoms may include easy bruising, fainting, and gastrointestinal issues
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♥️Understanding Vascular Ehlers-Danlos Syndrome (VEDS) for VED…
1.6K views6 months ago
FacebookAortic Hope
Vascular Ehlers-Danlos Syndrome (vEDS) & Genetic Testing Presented by Dr. David Saperstein. 𝐯𝐄𝐃𝐒 (𝐕𝐚𝐬𝐜𝐮𝐥𝐚𝐫 𝐄𝐡𝐥𝐞𝐫𝐬-𝐃𝐚𝐧𝐥𝐨𝐬 𝐒𝐲𝐧𝐝𝐫𝐨𝐦𝐞) is an uncommon, dominantly inherited, genetic connective tissue disorder. vEDS is rare and patients usually have a very characteristic appearance to their face and skin (skin is very translucent and veins are very prominent). Vascular Type EDS is considered the most serious form of EDS due to the possibility of arterial or organ ruptur
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Vascular Ehlers-Danlos Syndrome (vEDS) & Genetic Testing Present…
4.5K views3 months ago
FacebookCenter for Complex Neurology, EDS & POTS
"My Tata is how I got diagnosed with vascular Ehlers-Danlos syndrome (vEDS). Growing up in a primarily Hispanic and economically disadvantaged community in Arizona, me getting hurt and sick all the time was just me being “drama” or “not tough enough." 😀 But my grandpa believed me. Everyone said he “babied” me. But when it came down to it, he was the one taking me to appointments and the ER. He took me to THE appointment that got me diagnosed. I owe this all to him ❤️ believe POC patients!" - Da
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"My Tata is how I got diagnosed with vascular Ehlers-Danlos syndr…
21.4K viewsMay 25, 2024
FacebookThe Ehlers-Danlos Society
Ved's Art on Instagram: "Follow : @veds_art_sketches . . #drawing #reels #veds_art_sketches . . [artist, art, painting, viral, trending, explore, explorepage]"
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Ved's Art on Instagram: "Follow : @veds_art_sketches . . #drawing …
806 views3 months ago
Instagramveds_art_sketches
My symptoms with VEDS ❤️‍🩹 #veds #vedsawareness #ehlersdanlos #ehlersdanlossyndrome
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My symptoms with VEDS ❤️‍🩹 #veds #vedsawareness #ehlersdanlos #e…
1.1K views3 months ago
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